That, however, did not expect! The Ministry of Health has made me a nice surprise today and answered a letter addressed to Them on Imuran drug reimbursement clarification on one of autoimmune diseases which is myasthenia. Doubted that I get the answer - a letter sent in May, in August I received an explanation asperger syndrome from the National Health Fund, and I thought that at this end and here, in September surprise - Ministry of Health did not forget about me! I wrote to you about my problems asperger syndrome with the discharge of the drug Imuran for a lump sum - in April physician specialist outpatient treatment of myasthenia gravis implemented Imuran me, wrote him a prescription for a lump sum but only one package, and no further information for the GP that the drug is reimbursed. However, neither asperger syndrome the primary care physician or a local neurologist not having such a wide range of medical knowledge as a specialist in myasthenia gravis, they did not want me to write on this drug as a lump sum by. their knowledge and current list of reimbursed drugs list was not a drug associated with myasthenia gravis and record existing in the off-label indications covered by the refund "autoimmune diseases asperger syndrome other than those specified in the SPC" - they did not say anything, did not know what under this heading is hidden, what disease or myasthenia gravis is included there. They preferred not to risk it and do not write in. Even neurologists during my last stay in the hospital asperger syndrome firmly said that Imuran (over which debated whether to include it now to the end of my treatment miastenicznym), a provision for 100% me a fee - if I had not provided them with explanations NFZ in that case ( that is, it would be for them if need be "washer"). Ministry of Health - Department of Pharmacy Drug Policy and explains (quote fragment w / in reply): "... on the day of July 1, 2014 containing medicinal products in the composition of azathioprine are the beneficiaries: - free of charge (B) in the indication: malignant or - lump-sum payment (R) - all approved indications at the date of the decision (Section 4.1 of the SPC) and pozarejestracyjnych indications: inflammatory bowel disease other than autoimmune disorder - children up to 18 years of age IgA nephropathy other than autoimmune disorder - in children to 18 years of age; vasculitis asperger syndrome other than autoimmune disorder - in children under the age of 18 autoimmune diseases other than those specified in the SPC, the state of the limb transplant, corneal tissues and cells; Sarcoidosis, Interstitial pneumonia - in cases other than those listed in CHPL; granulomatous asperger syndrome lung disease - in cases other than those mentioned in CHPL. " Most important: "Because the notice on the reimbursement list does not specify what the patient's asperger syndrome autoimmune diseases are eligible to obtain drugs containing Azathioprine for the lump-sum asperger syndrome payment, the Department of Pharmacy asperger syndrome Drug Policy and in accordance with the opinion of the Professor Danuta Ryglewicz, National Consultant ds.Neurologii, is of the opinion documented that all of autoimmune diseases (including myasthenia gravis), located in the indications for a refund. Furthermore, there is no need to quote evidence of autoimmune diseases substrate which, according to medical asperger syndrome knowledge are recognized as a disease resulting from autoimmunity. " Thus ended the matter Imuranu, everything was explained himself. Doctors can easily introduce me to this drug for treatment. Does it give it remains to be seen - as they said neurologists from the hospital - where half-yearly steroids will not bring satisfactory results - so, if everything will be fine do not see the need for implementation by me so. have a strong drug. Another thing that will tell my specialist from the Clinic of myasthenia gravis, as it will address the whole thing, or will not claim that I used not to its recommendations and use Imuranu (but it's not my fault only with her), which in general will say to my current treatment and the fact that I had a breakthrough myasthenic? About this I will find out in late October - only then I owe her a visit, after 5 months - this is the treatment of distance has just ...
Tags: autoimmune diseases, neurological diseases, diagnosis and treatment of myasthenia gravis, Imuran, treatment and medication in myasthenia gravis, drugs used in myasthenia, myasthenia gravis, myasthenia-treatment
Hi Alu I wrote you an email already on that very strange're treated by doctors. My primary care doctor in rd never had a problem with my discharge medications. He knows very well that Encorton, azathioprine are miasteników fixed rate. A year ago, as I began treatment immunosupresujne, after leaving the hospital, asperger syndrome I had only an excerpt, and on this basis printed ryczałt.Dopiero drugs after about 5 months, I received five recommendations from the doctor with Muscle Diseases Clinic. My doctor neurologist at each visit, setting another date tells me that if something bad happens I have to call. As I read as
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